I’ve decided to keep a video diary during my week at the clinic and will be posting the films of what happens each day of the week we are there from October 13th to 18th so our friends and family can get daily developments here!
Hi, I’m Helen and I live in the UK
This is for those taking part in the amazing trials about to take place this Autumn for a new drug procedure for blind people that almost guarantees to totally restore our sight!
Here’s the link to the clinic that are going to be treating us for anybody not familiar with Professor Cudo’s work, interested to know what you make of it:
This is Stephen in Harrogate
This is PJ in New York
This is Steph in north London
This is Aphrodite in Greece
This is Debs in Brighton
This is AJ in central London
My sister tells me that some of you are chatting about the trials on Twitter, I just can’t get to grips with Twitter, it’s not very accessible. But she said there’s already a bit of a buzz about it. So, have a look out on there for other people who are going to be joining us in Zagreb. She said people are using a hash tag thing called eyes. I’m supposed to write that #eyez. She’s sitting here right now making sure I get this right for you, so you can go on there and see what people are saying.
But please don’t forget to come back on here to tell me all your news and plans for your trip to Zagreb. And this is where I’ll be putting my video diary while we are out there, so all our loved ones can follow our progress through the trials.
This is Tom in New York
Hello everyone. I’ve decided to put a countdown on the blog. I do feel like I can almost hear the clock ticking now.
Here is Jane
Here’s Dee Dee from Chicago
This is Kelvin in Southbank, London
This is Larry from Atlantic City in America
This is Katja, who is from Zagreb where the clinic is!
First video upload attempt from Zagreb
… in the taxi queue at the airport
Hi I just met up with Tom at the hotel. He’s just as gorgeous in real life!
Fantastic, just bumped into PJ in the hotel bar.
After I ran into Debs we took a stroll around the hotel with to familiarise ourselves with the area. (Sorry to nearly out you online, Debs!)
Met Stephen from Harrogate on the way back to the hotel and helped him to his room. We had a bit of a heart to heart… such a sad situation.
‘Sightseeing’ can be a bit tiresome with a visual impairment but not long now til it will all be crystal clear! This is Jelacic Square in Zagreb
Luckily I met this lovely lad who offered to show me round the Old Town
We passed a statue of St George on the way to a spooky part of the old town, we had to be quiet filming here as there are people praying. The Stone Gates are where people light candles for the dead
Nina said this church has a beautiful multi-coloured roof but it’s pretty much a blur to me.
Impromptu poetry reading here of something that seemed apt, by Antun Matos, whose statue this is. Nina’s getting very good at audio describing everything for me.
‘My light is dimming…’ Not for me Antun! Looking forward to seeing the light very soon
Standing on a corner wearing Croatian national dress, what a way to make a living!
In a few days’ time I will be able to see this wonderful view of Zagreb just as clearly as Nina can. Can’t wait!
Just learned the trials have been put off til Monday. So more waiting around – feeling a bit low. At least I’m here with PJ, Debs and the rest so we can hold hands together I suppose.
I’ve managed to get Dr Cudo at Sloboda Clinic to agree to an interview though, and I’ll upload that – hopefully in the next few days.
Decided to pop back to the Stone Gates in Zagreb old town and this time caught it with candles lit to the dead. Felt like I needed to say a little prayer for myself and the others too, that this wait for a cure will finally end.
At last I get to meet the man whose treatment is going to restore my sight – mine and everybody else’s here taking part in the trial
So today is the day of the trials that Professor Cudo says will cure my visual impairment. Here are my first thoughts from this morning, I’ll be posting all today’s events as I go along. Thanks so much for following us all on our path to regaining our sight
Well, I’m at the clinic. One step at a time…
PJ and Stephen are here, and Larry Loo has just been called in for treatment. Sadly one of the other patients here found it all too much. I am feeling quite overwhelmed myself
Another batch of patients in the waiting room. I’m getting more and more nervous about this, I don’t know how Dee Dee can seem so relaxed
I managed to catch Larry immediately after having the treatment – he seems over the moon. It can’t be long til they call me now
They called my name…
Feeling numb, film says it all really
I’m going to post here on Helen’s blog to share what I know about what’s going on in Zagreb. If anyone knows anything, please share it on here so we can keep each other informed.
All I know for sure is that I haven’t heard anything from Helen since late on Sunday night. I’ve tried to phone the hotel where she was staying, but I just get a strange tone. I don’t know what it means. I tried to email and phone the clinic, but no one answers anything.
I know that a lot of you haven’t heard from your family and friends either, and I haven’t heard from anyone who has found out anything.
I told Helen I was very worried about these trials. I followed up on something I saw on here about Professor Cudo and the clinic not showing up on a Google search. I just couldn’t find anything about him. Helen’s sister looked into it more closely and she couldn’t find any mention of the clinic or Professor Cudo on the website for the European council for Research into Sensory Restoration.
Please, if anyone hears anything from someone out there, let us know.
I’ll do the same. If we all stick to this thread now we can all keep track of what’s happening.
Good luck everyone.
This is Gordona gain i’ve just found this
i got into helens youtube account & there is some more footage it seems to be from last Monday but. She must have uploaded it somehow God i’m so sorry it looks like something terrible happened PLEASE CAN ANYBODY OUT IN ZAGREB PLEASE CONTACT ME I HAVE TO FIND HELEN I DON’T KNOW SHE MIGHT STILL BE ALIVE
I’ve got to find Helen. I’m going to get a flight out tomorrow and see if the Foreign Office or somebody can help me find Cudo PLEASE CONTACT ME IF YOU ARE MISSING A LOVED ONE AND WOULD LIKE TO SEARCH FOR THEM WITH ME